Back to the drawing board

Back from Egypt, the whole holiday I was fit free. I had a few funny moments and dizzy spells but nothing to worry about. First holiday I have had since being operated on, so this meant it was my first holiday with a swimming pool and beach so I was teased by them as was not allowed in!

I went back to work feeling relaxed and ready to go. For two days I felt good (as you can while at work). Them I woke up on the third day with the metallic taste in my mouth, this usually means I am going to have a fit but generally felt fine. I went into work the next day and the metallic taste was still there but it was different and I felt like a fit was on its way, I ended up going home from work in case I was going to have one, I still felt odd all day but nothing happened.

I woke up the next morning, usual routine, watching breakfast news and I felt like I was going to have a fit any second, so I ran into the bedroom and got on the bed and waited, nothing happened. After waiting I got up and went back on the sofa. Then 20 minutes later it happened again so I ran in the bedroom, next thing I know I wake up on the bed after having a fit. My wife said it was different to my standard fit, this time I was lying there, unresponsive with heavy and quick breathing for and 1.5 minutes. When I woke up I was not my abusive to her but wasn't sure what happened but realised I had bitten my cheek. I did not go into work and stayed at home, The seizure had taken all m energy so I went straight to sleep and slept for 3 hours even though I had just had a good nights sleep. When I woke up I still felt strange and went and watched television, for about 4 hours I was like a zombie and even though I was awake my memory was short term and couldn't really remember what I had watched 30 mins later. At about 4 my brain switched on and it was back to normal, it took the longest it ever has to 'reboot'.

As my medication is still not working i thought I have to see my NHS Neurologist to get me on some new medication. I had still not heard from the hospital after getting a request from my GP so rang my neurologists secretary as it had been 5 weeks with no response. I rang the secretary up and she informed me that no request had been received which is why I had no response. As I had got a referral she let me book an appointment on the phone. My usual wait time for an appointment is about 4 weeks, I was informed the next available appointment was DECEMBER!!! Only 2 months before my annual appointment I booked in February! Because I had had my operation and had been prescribed some tablets I was no longer an emergency and was not on the list to be rushed through, only way I can get in before is the small chance of a cancellation, but I have to ring up all the time and it does not guarantee a slot.


Due to my epilepsy not being managed properly I have also been put on less hours at work and my management responsibilities delegated to someone else. Due to not having much notice when I was going to be off I kept leaving my team in the lurch. I am still going to be working but if I feel funny I can just go and if I feel a bit funny but nothing to serious I can work from home, working with out the stress. He fully this will help make me better.

I am going to give it a week or so and see how I feel, but I need to change my medication, this looks like I am going to have to go private and go and see the doctor I have seen before. The NHS is letting me down!

Let's see how I feel next week, at the moment I am feeling it hard to let work responsibilities go but I am slowly letting go. Life of a modeller for me for a while, luckily I find it relaxing.